This crazy little thing called Hirschsprung’s Disease


So in case, you haven’t figured out yet – my world revolves around my two little monkeys – EJ & Moo. My boys aren’t just special because they are mine, they are special because they both have a rare genetic disease. (Technically this disease is becoming less rare and that makes me terribly sad.) My boys both have Hirschsprung’s disease. My non-medical way of telling the story of this disease looks like this – while my babies were in the womb their large intestines formed but didn’t work. So when they came out of me they weren’t able to pass stools. The solution to the problem was for an amazing surgeon to take out their large intestine in its entirety. Now, this isn’t a bad solution for my boys – we got VERY lucky in the severity of their diseases – though side effects that they ended up with sometimes make me wanna cry… But I digress, the surgeries went very smoothly and the boys have recovered beautifully.

EJ Slide

As most of the HD kids who have had their reconnection surgery, both boys ended up with some very acidic stools which caused breakdown of the skin on their bottoms [read: extreme diaper rash]. Thanks to our surgeon’s wound care specialist we got an amazing [reads – expensive beyond my wildest dreams!] (thank goddess for great insurance) diaper paste that helps give their skin time to heal. They are both on special diets – (one which we all wish we could be on) high fat and high salt.

All that said, we got incredibly lucky. I have read of children and adults dying of HD. I have read of children having so many many more problems than my boys ended up with. What they ended up with was an easy version of the disease and a cow’s milk allergy. I can deal with this. Or at least today I can.

Moo carseat

If you are an HD parent, friend, or patient reading this, well, I send you my love. I send you the ability to breathe in the calm during those moments that seem to go on forever without an end in sight. You aren’t the only one out there and there is more than one way to handle the problems that HD throws at you I promise!!


Love & Peace



Time for some motivation? You betcha!

Here we are almost halfway through the year and I don’t know about you but my goals have changed a bit thanks to giant life changes that my family is going through. I have dropped some of my original goals (such as a family vacation to California) and replaced it with more necessary goals (such as a second evening job working from home). In the process I have found my motivation, namely these two monkeys.


I realize that I want them to see their mama reach the goals she sets for herself. And in doing that they realize that they can do anything they are willing to work hard for.

So right now I/we are just at the beginning stages and it’s kinda scary to see the steps we are going to go through but (A) I love a good adventure/growing phase and (B) I know we will come out changed for the better. See this for motivation.

And then there is this (which is my current motto)


So my goals currently aren’t small by any means but they are also not optional.

1. Get a part time evening job you can work from home. (Need to make up income for my budget which says I don’t have enough money for my month)

2. Take excellent care of myself. (If I don’t there will be no way of taking care of goal #1 or my children)

3. Lose 80lbs of fat. (As I stand currently my body is starting to show me how it’s not happy with me. Time to make it happy.)

4. Make sure that my boys feel and know that they are loved and that mommy is going to take them to do fun things! (List of fun thing to follow!)

So this is where I stand. 4 goals. All necessary. All transformative.

Where are you with your new year’s goals? Have they changed your life? Or have they changed all together? Do they still inspire you?


A love letter to the village

They say it takes a village to raise a child – so…

Dear Village,

Thank you.  No that doesn’t even begin to describe what I am feeling towards you. I am humbled, thankful, grateful, indebted, appreciative, relieved and overall I am utterly and totally honored that each one you would take such precious time out of your busy lives to include my two monkeys in them.

mikey lap No matter how small or great; you have helped to ensure that my boys know they are loved & wanted. They will know they are special because all of you amazing people have chosen to give part of your time – your life – your knowledge to my little men. These two boys are my life and I don’t think I could get be raising them as well as I am without each one of you.

I am grateful to have you in my/their/our lives. I appreciate you and everything you have done and do for my boys. You have helped give them this rich & wonderful life they have. They are happy and healthy (for the most part). And that has a lot to with you – the amazing people that have come to love & care for my babies.

ej at deerfieldIn conclusion, my dear Village, I thank you & your love & effort. You have helped & are helping me raise some truly amazing boys!

With love & respect,

Their Mommy


Losing Weight: Movement & Food

Hello Divine Wanderers!

  I am not sure about you but I have struggles with my weight most of my life. When I say struggled I don’t mean anything extreme like eating disorders but I have always been overweight and have never had the discipline to stick with a healthy change in my life.   I have finally hit the point where I’m trying to be honest with myself and I’m not happy with how my body looks but I’m not looking to fit into a certain dress size, instead I want my body to feel healthy and I want need to be able to keep up with both my little boys. I’m tired of being in discomfort and pain all the time.

With that said, I have decided to get my body into good health and not just to let it teeter on the fence of health and sickness on either side.

My overall goals look like:
    1. Daily movement get to 10,000+ steps daily by 12/31/14 (as counted by my FitBit Flex)
    2. Weight under 200 by 12/31/14
    3. Vegetarian/vegan entirely by 12/31/14
The baby steps to get me to my goals are the following:
    1. Walk daily at 7pm for at least 30 minutes
    2. Choose more veggies and fruits over meat
    3. Add yoga before bed 5-10 minutes nightly
    4. Work on hitting the water intake goal of 90 ounces per day.

I plan to find my inspiration and motivation in my foods and in blogs that have great whole food vegan/vegetarian recipes and on my Pinterest boards found here.
    1. Food
    – Quinoa garlic and pan fried veggies
    – Mexican quinoa, black beans, avocado

     2. Blogs
    – Vegan Richa (
    – Oh She Glows (
    – Happy Herbivore (
    – Post Punk Kitchen (
What are your movement and food goals/wishes? What “bad” habits are you looking to let go of?

Schedules & Routines: Taming the Chaos

Hello Sacred Wanderers!!

One big thing you should know about this Goddess of the House is that she has the heart of a gypsy! Unfortunately for her, she married a stable man who is content staying where he is. (And in all honesty that’s not such a bad thing)

So, not only do I dislike hate to be one place too long but I hate fear routines like a fat kid fears P.E.! I’ve always felt that if I made a routine for myself that my life would suddenly be boring and totally unadventurous (yes, I made a new word). I always worried that by having the boring,  same day in and day out,  that I would lose my appreciation for the little things in life.

However,  now I’m a mom with 2 small boys and they NEED their routines to be consistent. (Insert huge groan here) Routines and consistency ate two of the WORST words in my vocabulary!!


With that said – as much as I hate routine and consistency, I would go insane if my boys didn’t have a routine! The crankiness and feistiness would drive me insane!

Needs & Goals to achieve the best routine
    1. Flexible
     2. Not all consuming
    3. Baths daily for both boys
    4. Exercise of some kind daily for everyone
    5. Ability to achieve domesticity needs.
    6. More energy for mom & dad

The trial schedule/routine:


Top of the page has my daily chore themes.
Monday = Beds & Bath day
Tuesday = Family day
Wednesday = Living Room & Hallway/Stairs
Thursday = Kitchen & Plan day
Friday = Errands
Saturday = Basement
Sunday = Rest

The inside of the grid has daily breakdown:
Light blue: Chow time
Orange: Sleepy time for my little man
Green: Walking time for mommy
Yellow: Weekly time for the boys out of the house
Purple: Bathtime for my little men

Under the grid is my breakdown of my morning, afternoon, and evening routines (just so I don’t get overwhelmed)..

The next step is keeping track of everything, now I have this love of writing things down in my planner unfortunately; I don’t generally carry my planner with me and even after I write things down, I don’t check my calendar daily…

While I always have my phone because I don’t have a lot of time to get on the computer with two boys running me into the ground! 🙂 So I’m trying new ways of keeping my productivity up and keeping myself moving.

Step one is to be more religious about using my calendar on my phone. (So far that seems to be working, just need to move my bills over to the calendar)

Step two is using my Wunderlist app to keep track of my to do lists and any projects that come to mind. (Again so far so good! I’m actually pretty good about checking it and staying up to date with it.)

What does your schedule do for you?  What have you accomplished by having a routine?  What’s do you prefer to use to keep track of your schedules?

Finding the beauty in the chaos

Hello darling wanderers!

Welcome to my special space of chaos! We have been trying to acclimate to our new addition and help my toddler find his stride in being a brother and no longer an only child. I’m really proud to report that he’s doing a great job of the transition. I won’t lie and say all is perfect – it’s far from it – he’s still a 2 year old and has his melt downs and his ignoring me drives me up the wall. But he’s healthy and most of the time he’s happy, so I’m not going to complain.

As I start to find my routine with my boys I have started to find my lulls and highs in my energy. The lulls hit me really hard in the morning but afternoon and night give me the energy to attempt to keep everything functioning.

My house needs a second mom to keep up with the cleaning – especially with the pet hair which apparently is something the baby might be allergic to. :-/


This week I will be working on schedule planning, which will include cleaning,  activities for the boys, and exercising. I know that I need to be a bit more consistent in certain things I haven’t been doing but should be.

Next week we begin implementation!  🙂

What are the things you want to change in your life this summer? Have they been hindering you or will they help you?

The transition from one child to two

Well here we are a little over 3 weeks postpartum.  My life consists now of an 8lb little thing and my nonstop 2.5 year old. My life is far more nonstop and fulfilled than I ever imagined. It’s a beautiful kind of chaos.

It has definitely been a learning curve – finding wind down time for myself in between making bottles or breastfeeding and running after my little man and giving him one on one attention so he doesn’t resent the baby. And I’m slowly working on my relationship with my husband into the mix.


My body is coming back to its original size slowly but surely. I plan to start working out as soon as the doctor clears me for it. Going to start with daily yoga, more walking, and some circuit training.
By the end of the year I will be down to 200 lbs and my ultimate goal is to fit into a size 12 – so 6 sizes to go! 🙂


What are your goals for this year? What are you doing to accomplish them?? What changes have you made this year that you are proud of the most????

Love and light